Sarcoidosis: “Asymptomatic”
Today, I was declared asymptomatic for sarcoidosis. Which should be good news, but I think it just points to differing yardsticks used by medical practicioners and patients.
Yes, at its worst (well, nearly worst — the absolute worst is blindness), sarcoidosis targets lung capacity and function, and that’s horrible and I’m glad I no longer have the 30-minute coughing fits and the like that I had in 2005. We had an office manager with sarcoidosis who had greatly reduced lung function thanks to all the granuloma studding the inside of her lungs.
But just because I’m breathing fine doesn’t mean that I’m asymptomatic: I still have pain in my joints, especially my left side, especially my left wrist and hand and knee. When I get up after a long time sitting down, our current office manager, Sharon, can hear my knee snap, crackle and popping from across the room, particularly when I’ve been off my meds for a few days.
Anyway, my prescription has been renewed and some more drug company coupons for free months’ supplies have been tossed my way as well. I’m also due for a chest x-ray to see if the granuloma on my lymph node have disappeared. I’m also going to go in for a Pulminary Function Test on Thursday.
Still, by any standards, my quality of life is a lot higher than it was this time two years ago.
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Yea, I’m so-o-o glad that your feeling better than you did back when. Hey, my knees
do that too. ( different reason ) We need to get your joints better so you can run around all
over after little [Arthas]. 😉
Happy Tuesday,
Brenda
Comment by Brenda — April 10, 2007 @ 10:55